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Practical Insights for Busy Caregivers

Help in the community

Most people don't realize how many resources are available in their local communities until they need them. And even then, they may not know where to look.

Louise Milligan

"I’d say if it’s Alzheimer dementia or any related dementia, call the local Alzheimer Society if you can, because they were fabulous." - Louise Milligan, caregiver

video (31 sec)
transcript

I’d say if it’s Alzheimer dementia or any related dementia, call the local Alzheimer Society if you can, because they were fabulous. They have social workers who can help you figure it out, they’ve got learning series where you can learn about the disease as the disease progresses, they’ve got opportunities for the person afflicted with dementia to participate in all kinds of activities, they have support groups so you can talk with other people who are on this journey and where they’re at and learn from them. So, they have a lot of resources. So, I would say, for sure. And they don’t cost you anything.

Gord Schacter

"Families, the patients see us as – family physicians – as being knowledgeable. They assume that we have a knowledge base of what the resources are out there." - Gord Schacter, family physician

video (47 sec)
transcript

Families, the patients see us as – family physicians – as being knowledgeable. They assume that we have a knowledge base of what the resources are out there. And the reality is there’s a lot of resources out there that we don’t know of. And, you know, I find that fairly commonly in my practice, when I talk to my colleagues, the more I do work as a leader in our LHIN that I go, “I never knew that existed.” And so… be able to have a resource that provides… or central resource that can allow us as family physicians to go to, us to direct family members and the individual patients to go to find those resources is extremely helpful.

Jim

"There’s lots of things out there, so look for them and try to get involved." - Jim, caregiver

video (32 sec)
transcript

There’s lots of things out there, so look for them and try to get involved. And I think sometimes it sounds like the caregiver gets so wrapped up in what their person… their spouse is doing that they don’t sort of look for things. They feel they have to be with them all the time and doing something with them all the time. And that, I think, is pretty hard.

Madeleine Roske

"Arno goes to the day program four days a week, and that… I can’t speak highly enough of the people who are in that program." - Madeleine Roske, caregiver

video (30 sec)
transcript

The other thing, apart from my friends, who have been really positive… Arno goes to the day program four days a week, and that… I can’t speak highly enough of the people who are in that program. They’re professional, and they really care. And I really feel he’s still functioning at the level he is because he has that stimulation four times a week. So, they do a marvelous job.

Gord Schacter

"Recently finding out about this website, caregiverexchange.ca, has been really helpful." - Gord Schacter, family physician

video (1 min 5 sec)
transcript

I’ve had… with my parents over the years… aging. So, I lost my mom about a year ago. But she had a long ten-year battle with dementia. And so with her, prior to going into nursing home, we had a lot of issues of trying to find out what are the resources that are out there that can help her maintain her independence where her and my dad were living. And once my mom went into the nursing home, my dad got a little more socially isolated. And so, my sister decided to have my dad move into her home with her and the family, and so she needed to know what resources were out there to help support him in the home. And so that’s been a challenge for us to look in her particular area – the Toronto area – to really know what’s out there. And ultimately for her, she’s had to find it by word of mouth. And so recently finding out about this website, caregiverexchange.ca, has been really helpful. And so, I provided her with that information, and now she’s doing some searches to see if she can find some additional resources for helping him out.

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